Archive for the 'Autism' Category
Calling me at 7:30AM?!?!
So for some strange reason I two calls back to back this morning from Vanderbilt. I could not answer it because I was working, and they did not leave a voice mail. I wonder what the heck it was about. At least they weren’t trying to sell me acne pills, or at least I hope they weren’t. I guess it could have been the billing department, or someone calling in regards to Laura’s classes? Who knows. Probably calling me about the big 40 bucks I owe to them for the remaining balance of the “diagnoses” that Gavin never got. Some horrible doctor, that should not be a doctor, out at Vanderbilt charged us over $1,400 to tell us that he simply does not have a clue what is going on with Gavin. $1,400!!! What a joke! And did I mention that we were on the “waiting list” for over 6 months?!?! They spend a total of 2 hours with our son, that is $700 per hour?! What a rip-off. I am thinking about taking my complaints with this whole thing a little further. I am not sure who to contact with a complaint, but I am going to bring this matter to someones attention!
No commentsStarting my “classes” at Vanderbilt on the 13th.
Starting Monday, October 13th, I will start parent classes at Vanderbilt. I believe I will be in a class with other parents with children that are between 15 - 25 months old that are at high risk for Autism. As of right now I believe there are going to be around 8 other sets of mothers or fathers that will be in the class as well. The teacher of the class came out to the house Friday and took some video of Laura’s every day activities, such as snack time and play time. She also brought my “text book”, which is HUGE. This book weighs a ton. It almost overwhelms me a bit. The crazy thing about this whole deal is that Laura seems to be getting better with her eye contact and she is trying to talk now, saying only a few words. I almost feel like Gavin is getting worse. I am so thankful that we decided to not get Laura’s MMR vaccine, as I seriously feel that she would be worse off had we done it. Gavin has gone back to having to have this tiny ball of fuzz to roll between his fingers and stim off of all of the time. BUT..it keeps him calm, and helps him get to sleep better, so in no way are we going to take it away from him. I have actually found myself running to the clothes dryer and getting some lint to roll into a small ball for him when he looses his fuzz ball. He once was ripping one of my quilts to get the cotton out of it to roll into a small ball. It drove me crazy! We are currently having a hard time getting him to eat when it comes time for dinner. We usually would sit around and pretty much tell him he could not get up until he ate it all, which would end in a crying fit, so we have decided to not force him to eat. It is better on everyone. It is so fustrating to get upset with him, when we can explain to him why we are, because he doesn’t understand, and he can’t explain to us why he doesn’t want to eat whatever it is in front of him. Sometimes we just feel LOST. I am just so THANKFUL that we found them both a new doctor. He is wonderful. Laura is getting a ton of early intervention, which is a blessing. I just wish at this point there were more options to help us with Gavin. He has prescribed medicine for ADHD, but I can’t bring myself to go get it filled and actually give it to him. Part of me would feel like I am “druging” him, and that is the last thing I want. He is having more crying fits, and seems to be stuck in his speech. Hopefully we can get him into some speech therapy, which he really needs.
No commentsThese two are wonderful.
I have never seen someone fight so hard for Autism awareness.
These two are very special people.
Opening so many eyes and ears.
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